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aimeeclev

 

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I am an RN who was diagnosed with Salicylate Intolerance in 2005.(I am also webmaster of this site )

History

From September 2004 I developed a swollen face(Angioedema) and antihistamines did not reduce the swelling. By mid October/November  I was vomiting every evening and I lost weight rapidly and dropped from a size 16 to 8 in clothes!!.Several Doctors and a private allergist later and no diagnosis so in desperation and with my medical training I searched for answers.

 

Research

Ten  years earlier I took Aspirin on duty and while I was giving over the report I developed a rash (like measles)with a swollen face .(The medical staff were delighted to have a first hand experience of the stages of an allergy reaction. !!)

Knowing I was allergic to Aspirin I found although rare  you could also develop Salicylate intolerance . I found a Allergist Medical consultant in Harley street who ran some test and diagnosed Salicylate Intolerance . But more importantly he suggested a Thyroid function test and the results were T4 of 60 .The normal T4 is up to 20 and if it had continued I would have collapsed .

Once diagnosed ,it all made sense, as I was losing weight rapidly, my hands and voice shook ,I was hyperactive and my brain was on hyper drive.

 

Treatment

It was very difficult at first to clear my system of the toxins which had been poisoning me and I had to go on a strict salicylate free regime (treatement). I also had to read all labels, avoid perfumes, chemicals, change make up to mineral makeup. The list was endless.

 

Graves Disease

I soon developed double vision and my eyes were still swollen .I developed Thyroid eye disease (Graves Disease) with optic neuropathy which again I had to diagnose myself!.The Ophthalmologist prescribed high doses of steroids and in order to save my sight and I paid for private Radiotherapy for two weeks .I went through several eye operations to treat the damaged.

 

Allergic reactions

In 2016 I had two severe allergic reaction (angioedma)sever swollen face, swollen lips, difficulty swallowing . One was due to eating a gluten free roll which can be full of chemicals . I had to go to A&E and started on high dozes of steroids.

I am now generally well but even when I avoid all things salycates I can become unwell with a swollen face nausea vomiting, generally unwell , lethargic . It builds up in your system and can be the results of a couple of days before .

 

Please do not self diagnose seek professional medical advice!

 

 

 

The hope of this website is to show clear simple ways to cope with Aspirin Allergy and Salicylate Intolerance and the information provided is designed to support,not to replace, the relationship that exists between a patient and their physician.

This website does not host any form of advertisement and it is self funded therefore the editorial content of this website does not have any conflicts of interest.

I am the creator/author/editor and webmaster of this site and therefore there are no conflicts of interest with any commercial. organizations.

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